Going Home

The Dr.'s made their rounds yesterday and were happy with the amount of food Lily Rose ate. They decided no NG was needed, they removed her chest tubes, did an echo, and took a chest x-ray.   After just an 11 day stay, a relatively short hospital stay for a Fontan procedure, we will be checking out of the hospital today.  We are thrilled!

Yesterday was a relaxed day at the hospital.  Without all the extra tubes and with Sarah Mei and Isabelle to join in the fun, Lily Rose made trips to the Atrium to play and enjoyed photo ops with some friends.

One of the photo opportunities was with Joy, a PCICU nurse, who has taken taken care of all 3 girls on their day of surgery.  This 1st photo is in PCICU on Day 2 after Lily's surgery....

This is a photo of Joy with all three girls. 

On one of the trips to the Atrium tomorrow the girls tried their hand at painting...

After painting, some players from the Citadel basketball team came by to visit with the children.  The Citadel is Phil's alma mater so it was fun for our girls to meet athletes from the school.  Sarah Mei and Isabelle looked extra tiny next to these players, a few of whom made Phil, at 6'2", look short.

After we got back to our room, we had a visit from our favorite PA, Jen.  She assists Dr. Bradley and is my go-to person for every question I have that pertains to cardio.  We've also become friends over the past 5 years as the girls have been visiting MUSC for their surgeries.  It was fun visiting with her this trip and getting a picture of her with all three girls. 

And finally Dr. Bradley, the cardio-thoracic surgeon who has done all 3 girls' open-heart surgeries, took a minute out of his incredibly busy schedule to visit Lily Rose in her room and take a picture with the girls.  We can't say enough about this man and what a blessing he is to our family!! 

This morning we're waiting to go get another chest x-ray and then Lord-willing, we'll head home for a two week break before I return to MUSC with Isabelle for her Fontan open-heart surgery.