Lily Rose is Getting the Fontan

We just received an update from Jennifer, Dr. Bradley's PA.  She said Dr. Bradley decided to go with the Fontan.  This means Lily Rose will have a single ventricle repair but will have 2 pumping ventricles.  It is not as good a long-term "fix" as the Rastelli would have been but since she will still have 2 pumping chambers, it is still a blessing. It gives her heart more long-term pumping power than our sweet Isabelle's heart.  (Isabelle has hypoplastic left heart syndrome and only has one small working ventricle.)

We do not know why he decided to do a Fontan instead of the Rastelli but trust Dr. Bradley's judgement implicitly.  This is the fourth open-heart surgery he has completed on our girls.  He is scheduled to do Isabelle's Fontan next month.   He is one of the best pediatric cardio-thoracic surgeons in the nation, so if he thinks the Fontan is the best fix...we'll trust him!

Now we just wait while the extracardiac Fontan work is completed.  I think this will make the surgery  shorter than the initial six hour prediction.  It is a slightly more straight forward procedure than the Rastelli was going to be on her heart, given it's unique physiology. 

Thanks for your continued prayers.  None of this is a surprise to the Lord.  Afterall He created Lily in the womb and counts each hair on her head...

"For the Lord is the great God, the great King above all gods.

In His hand are the depths of the earth, and the mountain peaks belong to Him.

The sea is His, for He made it, and His hands formed the dry land.

Come, let us bow down in worship.

let us kneel before the Lord our Maker;

for He is our God and we are the people of His pasture, the flock under His care." 

Ps. 95:3-7