As usual our family had to " divide and conquer" for this medical expedition.
We met with Dr. Bradley yesterday and discussed surgical options for Savannah Faith's scheduled Monday open-heart surgery.
As we knew, Savannah's original referral paperwork was erroneous, and her actual heart conditions include Double Outlet Left Ventricle, VSD, pulmonary stenosis, right ventricle hypoplasia, and left pulmonary artery stenosis and hypoplasia. She also has a unique right/left ventricle configuration which is called upstairs/downstairs vs. the normal left to right configuration. Due to all of these facts, Dr. Bradley believes the Glen/Fontan route will most likely be the best option for Savannah. He is probably going to leave an extra inflow tract, in addition to the Glen, to encourage more growth of her pulmonary artery. The possible downside of this option is she may drain more after surgery.
Thankfully we have implicit trust, under the guiding hand and wisdom of the great Physician, in Dr. Bradley's decision-making abilities and surgery techniques. After already completing five previous open-heart surgeries on our daughters', we know we are in capable hands!
After completing blood work, an regular echo and 3-D echo, an x-ray and visits with the anesthesiology team, surgical team and Dr. Bradley, we left the hospital around 3:30 p.m. on Friday afternoon. Savannah Faith was never so happy to leave a building. I wonder what she will think Monday morning when we walk back through those doors?
Today, since nothing medically was scheduled, we decided to head out to Charleston's famous Battery for some relaxation.
The architecture of this southern city has a charm and grace all it's own, and we had a great time strolling down the streets and looking at the homes.
Since moving away from the Low Country almost 16 years ago, two of the things I've missed the most are the amazing seafood and the majestic Live Oaks. Today at The Battery, I saw beautiful Live Oaks.
I'm not sure Savannah appreciated the grandeur of the architecture, the beauty of the waterway, or the magnificence of the trees...
but she did enjoy playing in the grassy area in the park.
Her favorite game was getting thrown in the air and caught by Torie.
And I enjoyed listening to her giggles and capturing all her expressions!
Tomorrow we rest on the Sabbath and then Monday is the big day.
We would appreciate your prayers as Savannah Faith heads into what will be a 5-6 hour open-heart surgery. I'll try to update the blog throughout the day, on Monday, and in the weeks ahead.
