Despite the fact that she hasn't reached the perfect 15kg (about 33 lbs.), Dr. Hammill wanted to go ahead and send her records to Dr. Bradley, the cardiothoracic surgeon, to come up with a game plan for her next open-heart surgery.
After the specialists conferred, the decision has been made to have Isabelle's heart cath in June. She has to have a heart cath to measure her pulmonary pressures, to check the diameter of her inferior vena cava (and one other thing, which escapes me). If all 3 of these look good, they will schedule her next open-heart surgery, the Fontan for some time this summer or fall.
I can't wrap my mind around the timing of our summer and fall. How do you schedule an adoption trip to China, a heart cath, an open-heart surgery for Isabelle with an estimated 4-6 week hospital stay and then an open-heart surgery for Lily. It could be interesting!
Isabelle is blissfully unaware of any of the upcoming events. Last week she was outside on our porch playing in her sandbox when unbeknownst to me she figured out how to turn on the water.
She was so proud of herself! I found her sandbox full of water, and she was happily "watering" our deck and steps. Then she spent literally hours playing in the sand/water conglomeration. Entertainment is so cheap!
2 comments:
Hi
My daughter had her Fontan last July, she was 32 pounds. She was in the hospital for 8 days. Her Oxygen level went from 77 pre-Glenn to 98-99 post Glenn and Fontan. You will be amazed at how different you daughter will be after her Fontan. Jadyn is so pink and plays and runs just like the rest of them now. thinking of you, if you have any questions, please let me know. Sue
Hello from Norway.
My daughter is soon 15 adopt from ccwi;-))
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